Health Ministry drafting national registry for persons with disabilities to improve service planning

The Ministry of Health is developing a strategic plan for persons with disabilities (PWD), focusing on integrating a national-level PWD Registry that will encompass the needs and profiles of the cerebral palsy (CP) community.

Health Minister Datuk Seri Dzulkefly Ahmad highlighted the importance of using both clinical data and lived experiences to inform the service delivery system, ensuring lifelong support for individuals with CP as they transition through different life stages.

The initiative aims to create an inclusive ecosystem that supports the dignity and normalcy of PWDs' lives.

Data collection for the registry will be ongoing to ensure effective service planning.

SHAH ALAM, Oct 10 — The Ministry of Health (MOH), through its Family Health Development Division’s Persons with Disabilities (PWD) Sector, has initiated strategic discussions on the development of the MOH PWD Strategic Plan.

Health Minister Datuk Seri Dzulkefly Ahmad said the ministry was also drafting a proposal for a national-level PWD Registry (OKU Registry), which would incorporate data and needs profiles of the cerebral palsy (CP) community.

“This step shows that your voices are being heard and translated into structured action at the ministry level to plan a service delivery system driven by actual data.

“Approaches such as the CP Living Library featured in this symposium are highly significant. Clinical knowledge provides medical and scientific evidence, while your lived experiences offer a human and empathetic perspective,” he said.

He was speaking at the opening ceremony of the 2026 Cerebral Palsy Symposium, organised by Gabungan Anak-Anak Palsi Serebrum (GAPS) at the Shah Alam Convention Centre here today.

MOH records showed that 1,076 children with CP had been registered and received early intervention services at health clinics nationwide from 2016 to 2025.

Speaking to reporters, Dzulkefly said the strategic plan was still at an early stage, but it was important to ensure that the needs of individuals with CP continued to receive attention throughout their lives.

He said CP required not only care during childhood but also continuous support as individuals transitioned into adolescence and adulthood.

“This is a lifelong need. We want to ensure this group has the opportunity to lead lives like everyone else, including in terms of careers, social relationships and starting a family.

“Our challenge is to ensure they are not excluded from the support system after leaving school. They need more than empathy and sympathy; they need an ecosystem that enables them to live a normal, dignified and inclusive life throughout their lives,” he said.

On the expected timeline for developing the PWD Registry, Dzulkefly said the initiative would be implemented continuously through an approach of ongoing improvement.

He said data collection had to begin in an organised and structured manner to ensure the registry contained high-quality data that could support more effective service planning. — Bernama

Eight-metre-deep sinkhole forces closure of Gua Musang-Kota Bharu road

Wider electricity bill protection, RM15b National Grid investment will benefit households, says TNB

Khazanah backs Budget 2027, pledges support for semiconductor growth and energy transition

Brace for bad weather: Thunderstorms expected in all Malaysian states until 6pm

卫生部正在制定一项针对残疾人的战略计划，重点是建立一个国家级的残疾人登记系统，该系统将涵盖脑瘫群体的需求和概况。

卫生部长拿督斯里祖基菲里·艾哈迈德强调，应结合临床数据和亲身经历来完善服务体系，确保为脑瘫患者在人生不同阶段提供终身支持。

该倡议旨在创建一个包容性的生态系统，以维护残疾人的尊严和正常生活。

我们将持续收集登记册的数据，以确保有效的服务规划。

莎阿南，10 月 10 日讯——卫生部通过其家庭健康发展司残疾人事务部门，已启动关于制定卫生部残疾人战略计划的战略讨论。

卫生部长拿督斯里祖基菲里·艾哈迈德表示，卫生部也在起草一份关于建立国家级残疾人登记册（OKU登记册）的提案，该登记册将纳入脑瘫（CP）群体的数据和需求概况。

“这一步骤表明，你们的声音正在被听到，并被转化为部级层面的结构化行动，以规划一个由实际数据驱动的服务提供系统。

他说：“像本次研讨会上介绍的CP生活图书馆这样的方法意义重大。临床知识提供医学和科学证据，而您的生活经验则提供人文关怀和同理心的视角。”

他今天在沙阿南会议中心举行的由脑瘫儿童协会 (GAPS) 主办的 2026 年脑瘫研讨会开幕式上发表了讲话。

卫生部记录显示，2016 年至 2025 年间，全国卫生诊所共登记了 1076 名脑瘫儿童，并为他们提供了早期干预服务。

祖基菲里在接受记者采访时表示，该战略计划仍处于早期阶段，但重要的是要确保脑瘫患者的需求在其一生中持续得到关注。

他表示，脑瘫患者不仅需要在儿童时期得到照顾，而且在他们过渡到青春期和成年期时还需要持续的支持。

“这是一项终身需求。我们希望确保这个群体有机会像其他人一样生活，包括事业、社交关系和组建家庭。”

他说：“我们面临的挑战是确保他们离开学校后不会被排除在支持体系之外。他们需要的不仅仅是同情和怜悯；他们需要的是一个能够让他们终生过上正常、有尊严且包容的生活的生态系统。”

关于残疾人登记册的预期开发时间表，祖基菲里表示，该计划将通过持续改进的方式不断实施。

他表示，数据收集必须以有组织、有条理的方式进行，以确保登记册包含高质量数据，从而支持更有效的服务规划。——马新社

八米深的天坑迫使话望生至哥打巴鲁公路封闭

国家能源公司表示，扩大电费保障范围以及对国家电网150亿令吉的投资将惠及家庭。

国库控股支持2027年预算案，承诺支持半导体行业发展和能源转型。

做好应对恶劣天气的准备：马来西亚所有州属预计在下午6点前将出现雷暴天气。